Children & Youth
Palliative Care for Children and Youth with Chronic Disease
Project Lead: Gerri Frager ()
Trainees: Jessica Dooley, Jennifer Wililams, Patricia Murray, Rebecca Earle
Objectives: To carry out qualitative research and establish population based indicators of quality end of life care relevant to infants, children, and youth.
A play resulting from a journal kept by Ed, a 16-year old with advanced bone cancer, during his last four months of life. The play was commissioned by Dr. Gerri Frager, Medical Director of the IWK’s Pediatric Palliative Care Service and ºÚÁϳԹÏÍø’s Medical Humanities-HEALS Program.
- [PDF]
- Qualitative analysis of Ed's journal by Shauna Flavelle during her pediatric residency at Dalhousie:
Reports
Jennifer Williams, 2010
• Master Thesis - Neonatal Palliative Care: Inter-Professional Communication and Collaboration
Alison Zwaagstra, 2009
• [PDF]
Presentations [PDFs]
Alix Carter, Rebecca Earle, et al., 2011
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Posters [PDFs]
Jessica D. Dooley, 2007
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Publications
Carter A.J.E., Earle, R., Gregoire, M-C., MacConnell, G., & Frager, G. (2012) Breaking down silos: Building better palliative care.Ìý Canadian Journal of Emergency Medicine, 14(3): abstract.
Related and relevant publications
Holly R.L. Richardson, 2013
• , PhD Thesis. ºÚÁϳԹÏÍø, June 2013.
Widger, K. & Wilkins, K. (2004) What are the key components of quality perinatal and pediatric end-of-life care? A literature review. Journal of Palliative Care, 20, 105-112.